Nicholas Barros with Sara Osman MD, physiatrist, and J. Andrew Bowe MD, pediatric orthopedist.
Eleven-year-old Nicholas Barros was born with a condition called Lennox-Gastaut syndrome, a severe form of epilepsy. As a result of this condition, Nicholas has major medical issues relating to his weak joints and the need for support.
His mother, Estela Perez of Bernardsville, NJ, brings him to the Matheny Center of Medicine and Dentistry (MCMD) to see the pediatric orthopedist and physiatrist, as well as the dentist. “If the clinic weren’t here,” she says, “I would have to go from hospital to hospital. All the doctors here take care of him.” And if there’s a service Matheny doesn’t have, “the put me in touch with other doctors,” says Perez. “They don’t just leave me alone.” Nicholas also makes regular visits to the MCMD’s seating and mobility clinic, where adjustments are made to his wheelchair, and where, says Perez, “they have provided me with information that helps us make our house more accessible.”
The MCMD specializes in healthcare for people with mild to severe developmental and intellectual disabilities in an outpatient setting. It gives more than 800 New Jersey kids, teens and adults with disabilities the best outpatient medical, dental and therapy care possible.
Nicholas attends The Matheny School, and his school physical therapist, Elizabeth Hess, accompanies him and his parents during visits with the orthopedist and physiatrist. “It prevents important information from being lost,” Hess explains. “It allows me, after hearing what the doctor says, to go over it with Nicholas’ parents later, because sometimes it’s hard to take in all at once everything the doctor says.”
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Estela Perez and Nicholas in the waiting room.