Dylan Vongrej was born with Canavan disease, a disorder that causes progressive damage to nerve cells in the brain. Dylan is non-verbal and unable to walk, but, according to his mother Noreen, “He understands everything you’re saying.” He’s also learning to communicate, thanks to speech therapy he’s receiving from Matheny.
When Larissa Garcia was born, everything seemed normal. Then, a few days later, she had difficulty breathing. Genetic tests revealed that she had Trisomy 13, a chromosomal condition associated with severe intellectual disability and physical abnormalities in many parts of the body. Because of the life-threatening medical problems that present themselves shortly after birth, many Trisomy 13 patients don’t survive past infancy, but Larissa is now nine years old and attending school in Mount Olive, NJ.
If there’s one message Maryanne Tortorello of Randolph would like to deliver to parents of children with disabilities, it’s “Don’t judge a book by its cover.” Tortorello’s daughter, Mary Rita, was born three months premature in 1995. When she was almost two months old, Mary Rita experienced bleeding in her brain, which developed into cerebral palsy. After three years of early intervention, she attended the P.G. Chambers School in Cedar Knolls, graduating from eighth grade in 2011. The Tortorello family visited The Matheny School as a possible option for high school, but the transition from the ambiance of an elementary school to that of a school located in a hospital setting with adult patients, was somewhat disconcerting.
Charles “Chuck” Matheny 1941-2017
Dear Matheny Friends and Family: It is with great sadness that we have to inform you of the passing...Read More
Amazon Smile donates to Matheny
If you shop online, please use the link in this post and the AmazonSmile Foundation will donate 0.5% of...Read More
The Perfect Gift for Giving Tuesday 2017
The world outside our walls is just as important to patient well-being as our facility itself. If you could...Read More